Wednesday, October 27, 2010
Cause for seizures
Well we finally got our answer on why Lily has been having seizures and now know that she will not out grown them. Please visit her other blog at http://lilyfight.blogspot.com/ to read about that.
Monday, October 25, 2010
Fund Raising Update
As of Oct 15th Lily's total is $43.09.......There will be another update this coming weekend, so keep your eyes open for that!
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Tuesday, October 19, 2010
Just a little fund raising update
Both Cliffside Key Club and Legends Sports Pub and Grille have agreed to do fund raisers! Yay! I will have more details about this as we iron things out.
Also I am waiting for the updated fund raising total....when I get it I will post.
Thanks for reading and please keep spreading the word!
Also I am waiting for the updated fund raising total....when I get it I will post.
Thanks for reading and please keep spreading the word!
Sunday, October 10, 2010
Welcome and blog purpose
I would like to take this time to thank you for coming to 4 Paws for Lily's blog.
Lillian is a beautiful, intelligent, active and happy 3 yr old living in Green, Ohio. In December of 2009 Lily had her first seizure. This seizure was ruled a Status Epiliptic (that is a seizure that does not stop without medical intervention). Since then Lily has had 4 more seizures. Three have been Status (one lasting 3 and 1/2 hours) and one was not but still lasted 10 minutes.
Lily's seizures are partial complex seizures. They are not what most people typically think of when they think of seizures. They are very quite, Lily becomes like a rag doll and hyper ventilates. Make no mistake though her seizures are extremely dangerous because almost all have been Status seizures. Lily's seizures have only happened at night when she is asleep and the family should be asleep. But trust me....mama and daddy don't sleep much these days!
A prolonged seizure can cause brain damage and possibly death. We are VERY lucky that Lily suffered no repercussion from the last seizure that lasted 3 and 1/2 hours. I am sure you can imagine that our lives have been turned upside down by her epilepsy.
In April after one of her seizures I had an ER doctor suggest to me that we get Lily a seizure assistance/alert dog. I had never heard of anything other than seeing eye dogs at that point in time. After A LOT of researching we realized that this is something that our family could really, really benefit from! And then came the task of finding the right service dog organization. After much searching we found 4 Paws for Ability.
4 Paws for Ability is a service dog organization based in Xenia, Ohio. Most service dog organizations will place you on a waiting list while they raise the funds. The wait can be anywhere from 2-5 years. 4 Paws for Ability allows parents to volunteer to raise the funds themselves. This means no waiting list! Training a service dog cost about $22,000. Our family needs to raise $13,000 to meet the fund raising requirement required for placement of a dog. By raising the money ourselves, the wait time for a dog is greatly reduced.
A seizure assistance/alert dog can help us when Lily is having a seizure. The dog can also alert us that a seizure is coming there fore we can get Lily the medical attention she needs to get the seizure stopped that much sooner. Also a service dog can wake us up in the middle of the night if she were to have a seizure when we are all asleep. I am sure you can see the enormous advantages this type of dog would have not just for Lily but for our family unit as a whole.
Any donation will help and none is too small!
Please consider making a tax deductible donation to:
4 Paws For Ability, Inc at 253 Dayton Ave. Xenia, OH 45385.
Be sure to include"Lillian Secrest" on the memo portion of your check so that Lillian will receive proper credit.
To donate online please visit http://www.4pawsforability.org/donation.html
Please make sure you indicate that the donation is "In honor of Lillian Secrest"
If you are unable to donate at this time, but would like to donate products or services for our upcoming silent auction, please contact me (Hollie) at lilysfight@gmail.com
Or if you would like to help out with the fund raising (and I could REALLY use some extra hands!) please join the Yahoo group listed to the right or contact me at lilysfight@gmail.com
Please keep your eye on this blog for updates on the fund raising and upcoming events.
If you would like more info on Lily, please visit her blog Lily's Fight at http://lilysfight.blogspot.com
Thank you and God Bless!
Lillian is a beautiful, intelligent, active and happy 3 yr old living in Green, Ohio. In December of 2009 Lily had her first seizure. This seizure was ruled a Status Epiliptic (that is a seizure that does not stop without medical intervention). Since then Lily has had 4 more seizures. Three have been Status (one lasting 3 and 1/2 hours) and one was not but still lasted 10 minutes.
Lily's seizures are partial complex seizures. They are not what most people typically think of when they think of seizures. They are very quite, Lily becomes like a rag doll and hyper ventilates. Make no mistake though her seizures are extremely dangerous because almost all have been Status seizures. Lily's seizures have only happened at night when she is asleep and the family should be asleep. But trust me....mama and daddy don't sleep much these days!
A prolonged seizure can cause brain damage and possibly death. We are VERY lucky that Lily suffered no repercussion from the last seizure that lasted 3 and 1/2 hours. I am sure you can imagine that our lives have been turned upside down by her epilepsy.
In April after one of her seizures I had an ER doctor suggest to me that we get Lily a seizure assistance/alert dog. I had never heard of anything other than seeing eye dogs at that point in time. After A LOT of researching we realized that this is something that our family could really, really benefit from! And then came the task of finding the right service dog organization. After much searching we found 4 Paws for Ability.
4 Paws for Ability is a service dog organization based in Xenia, Ohio. Most service dog organizations will place you on a waiting list while they raise the funds. The wait can be anywhere from 2-5 years. 4 Paws for Ability allows parents to volunteer to raise the funds themselves. This means no waiting list! Training a service dog cost about $22,000. Our family needs to raise $13,000 to meet the fund raising requirement required for placement of a dog. By raising the money ourselves, the wait time for a dog is greatly reduced.
A seizure assistance/alert dog can help us when Lily is having a seizure. The dog can also alert us that a seizure is coming there fore we can get Lily the medical attention she needs to get the seizure stopped that much sooner. Also a service dog can wake us up in the middle of the night if she were to have a seizure when we are all asleep. I am sure you can see the enormous advantages this type of dog would have not just for Lily but for our family unit as a whole.
Any donation will help and none is too small!
Please consider making a tax deductible donation to:
4 Paws For Ability, Inc at 253 Dayton Ave. Xenia, OH 45385.
Be sure to include"Lillian Secrest" on the memo portion of your check so that Lillian will receive proper credit.
To donate online please visit http://www.4pawsforability.org/donation.html
Please make sure you indicate that the donation is "In honor of Lillian Secrest"
If you are unable to donate at this time, but would like to donate products or services for our upcoming silent auction, please contact me (Hollie) at lilysfight@gmail.com
Or if you would like to help out with the fund raising (and I could REALLY use some extra hands!) please join the Yahoo group listed to the right or contact me at lilysfight@gmail.com
Please keep your eye on this blog for updates on the fund raising and upcoming events.
If you would like more info on Lily, please visit her blog Lily's Fight at http://lilysfight.blogspot.com
Thank you and God Bless!
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